Cancer on the Margins : : Method and Meaning in Participatory Research / / Judy Gould, Jennifer Nelson, Sussan Keller-Olaman.

Cancer on the Margins presents the findings of the Ontario Breast Cancer Community Research Iniative, an organization created to investigate the experiences of women with breast cancer from marginalized and underrepresented groups. The authors examine the psychosocial needs of women living with brea...

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Bibliographic Details
Superior document:Title is part of eBook package: De Gruyter University of Toronto Press eBook-Package Backlist 2000-2013
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Place / Publishing House:Toronto : : University of Toronto Press, , [2016]
©2009
Year of Publication:2016
Language:English
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Physical Description:1 online resource (288 p.)
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Table of Contents:
  • Frontmatter
  • Contents
  • List of Tables
  • Foreword
  • Acknowledgments
  • Introduction
  • PART ONE. Research Design in Participatory Approaches
  • 1. Getting Started in Research with Marginalized Populations
  • 2. Ethical Considerations in Participatory Breast Cancer Research
  • 3. Community-Building versus Career- Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities
  • PART TWO. Approaches in Data Analysis
  • 4. Listening for Echoes: How Social Location Matters in Women's Experiences of Cancer Care
  • 5. 'Nurses Can't Do It. They Have a Hundred and Ten Patients': Health Professionals' Working Conditions and the Experiences of Informal Caregivers
  • PART THREE. The Politics of Representation
  • 6. The Stories We Tell: Processes and Politics of Representation
  • 7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority
  • PART FOUR. Reflections on Research: From Different Standpoints
  • 8. Reflections from an Intersection: Identity, History, Cancer, and Social Change
  • 9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways
  • 10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles
  • PART FIVE. Implications and Impacts of Knowledge
  • 11. Making a Difference with Research
  • 12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research
  • Recommended Sources For Further Reading
  • Glossary of Terms
  • Contributors
  • Index