Cancer on the Margins : : Method and Meaning in Participatory Research / / Judy Gould, Jennifer Nelson, Sussan Keller-Olaman.
Cancer on the Margins presents the findings of the Ontario Breast Cancer Community Research Iniative, an organization created to investigate the experiences of women with breast cancer from marginalized and underrepresented groups. The authors examine the psychosocial needs of women living with brea...
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Place / Publishing House: | Toronto : : University of Toronto Press, , [2016] ©2009 |
Year of Publication: | 2016 |
Language: | English |
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Gould, Judy, author. aut http://id.loc.gov/vocabulary/relators/aut Cancer on the Margins : Method and Meaning in Participatory Research / Judy Gould, Jennifer Nelson, Sussan Keller-Olaman. Toronto : University of Toronto Press, [2016] ©2009 1 online resource (288 p.) text txt rdacontent computer c rdamedia online resource cr rdacarrier text file PDF rda Frontmatter -- Contents -- List of Tables -- Foreword -- Acknowledgments -- Introduction -- PART ONE. Research Design in Participatory Approaches -- 1. Getting Started in Research with Marginalized Populations -- 2. Ethical Considerations in Participatory Breast Cancer Research -- 3. Community-Building versus Career- Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities -- PART TWO. Approaches in Data Analysis -- 4. Listening for Echoes: How Social Location Matters in Women's Experiences of Cancer Care -- 5. 'Nurses Can't Do It. They Have a Hundred and Ten Patients': Health Professionals' Working Conditions and the Experiences of Informal Caregivers -- PART THREE. The Politics of Representation -- 6. The Stories We Tell: Processes and Politics of Representation -- 7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority -- PART FOUR. Reflections on Research: From Different Standpoints -- 8. Reflections from an Intersection: Identity, History, Cancer, and Social Change -- 9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways -- 10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles -- PART FIVE. Implications and Impacts of Knowledge -- 11. Making a Difference with Research -- 12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research -- Recommended Sources For Further Reading -- Glossary of Terms -- Contributors -- Index restricted access http://purl.org/coar/access_right/c_16ec online access with authorization star Cancer on the Margins presents the findings of the Ontario Breast Cancer Community Research Iniative, an organization created to investigate the experiences of women with breast cancer from marginalized and underrepresented groups. The authors examine the psychosocial needs of women living with breast cancer, while investigating differences in treatment, care, and survivorship amongst Aboriginal women, women of colour, francophone women, lesbians, as well as young women, lower-income women, and women in rural areas. Structured as a guide for similar research, Cancer on the Margins provides a "start to finish" format that reveals the complexities of doing such work at each stage of research, beginning with the study design and ending with the dissemination of results. The authors address the challenges of working with and speaking for these groups of women, the tension between description and interpretation, and the challenge for qualitative work to present findings that positively influence the circumstances of research participants. With a strong commitment to social justice, this volume also shows how participatory research can lead to social change, and indicates effective ways to ensure that research not only reaches, but is also employed in, the communities it intends to serve. Bridging the gap between a wide range of audiences, this vitally important work will be of interest to health professionals, new researchers, policy makers, new researchers, and experienced investigators, as well as the public. Issued also in print. Mode of access: Internet via World Wide Web. In English. Description based on online resource; title from PDF title page (publisher's Web site, viewed 30. Aug 2021) Breast Cancer Patients Social conditions Research. Cancer in women Social aspects Research Ontario. Marginality, Social. Participant observation. Coursebook. MEDICAL / Research. bisacsh Austin, Stephanie, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Baker, Emerance, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Barnoff, Lisa, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Damianakis, Falia, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Fitch, Margaret I., contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Gould, Judy, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Grassau, Pamela, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Gray, Ross, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Griffin, Kara, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Hampson, Ann Wray, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Keller-Olaman, Sue, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Keller-Olaman, Sussan, author. aut http://id.loc.gov/vocabulary/relators/aut Maclean, Heather, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Mcgillicuddy, Patti, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Mitchell, Terry, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Nelson, Jennifer J., contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Nelson, Jennifer, author. aut http://id.loc.gov/vocabulary/relators/aut Odette, Fran, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Sinding, Chris, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Title is part of eBook package: De Gruyter University of Toronto Press eBook-Package Backlist 2000-2013 9783110490954 print 9780802094346 https://doi.org/10.3138/9781442687516 https://www.degruyter.com/isbn/9781442687516 Cover https://www.degruyter.com/cover/covers/9781442687516.jpg |
language |
English |
format |
eBook |
author |
Gould, Judy, Gould, Judy, Keller-Olaman, Sussan, Nelson, Jennifer, |
spellingShingle |
Gould, Judy, Gould, Judy, Keller-Olaman, Sussan, Nelson, Jennifer, Cancer on the Margins : Method and Meaning in Participatory Research / Frontmatter -- Contents -- List of Tables -- Foreword -- Acknowledgments -- Introduction -- PART ONE. Research Design in Participatory Approaches -- 1. Getting Started in Research with Marginalized Populations -- 2. Ethical Considerations in Participatory Breast Cancer Research -- 3. Community-Building versus Career- Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities -- PART TWO. Approaches in Data Analysis -- 4. Listening for Echoes: How Social Location Matters in Women's Experiences of Cancer Care -- 5. 'Nurses Can't Do It. They Have a Hundred and Ten Patients': Health Professionals' Working Conditions and the Experiences of Informal Caregivers -- PART THREE. The Politics of Representation -- 6. The Stories We Tell: Processes and Politics of Representation -- 7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority -- PART FOUR. Reflections on Research: From Different Standpoints -- 8. Reflections from an Intersection: Identity, History, Cancer, and Social Change -- 9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways -- 10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles -- PART FIVE. Implications and Impacts of Knowledge -- 11. Making a Difference with Research -- 12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research -- Recommended Sources For Further Reading -- Glossary of Terms -- Contributors -- Index |
author_facet |
Gould, Judy, Gould, Judy, Keller-Olaman, Sussan, Nelson, Jennifer, Austin, Stephanie, Austin, Stephanie, Baker, Emerance, Baker, Emerance, Barnoff, Lisa, Barnoff, Lisa, Damianakis, Falia, Damianakis, Falia, Fitch, Margaret I., Fitch, Margaret I., Gould, Judy, Gould, Judy, Grassau, Pamela, Grassau, Pamela, Gray, Ross, Gray, Ross, Griffin, Kara, Griffin, Kara, Hampson, Ann Wray, Hampson, Ann Wray, Keller-Olaman, Sue, Keller-Olaman, Sue, Keller-Olaman, Sussan, Keller-Olaman, Sussan, Maclean, Heather, Maclean, Heather, Mcgillicuddy, Patti, Mcgillicuddy, Patti, Mitchell, Terry, Mitchell, Terry, Nelson, Jennifer J., Nelson, Jennifer J., Nelson, Jennifer, Nelson, Jennifer, Odette, Fran, Odette, Fran, Sinding, Chris, Sinding, Chris, |
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j g jg j g jg s k o sko j n jn |
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author2 |
Austin, Stephanie, Austin, Stephanie, Baker, Emerance, Baker, Emerance, Barnoff, Lisa, Barnoff, Lisa, Damianakis, Falia, Damianakis, Falia, Fitch, Margaret I., Fitch, Margaret I., Gould, Judy, Gould, Judy, Grassau, Pamela, Grassau, Pamela, Gray, Ross, Gray, Ross, Griffin, Kara, Griffin, Kara, Hampson, Ann Wray, Hampson, Ann Wray, Keller-Olaman, Sue, Keller-Olaman, Sue, Keller-Olaman, Sussan, Keller-Olaman, Sussan, Maclean, Heather, Maclean, Heather, Mcgillicuddy, Patti, Mcgillicuddy, Patti, Mitchell, Terry, Mitchell, Terry, Nelson, Jennifer J., Nelson, Jennifer J., Nelson, Jennifer, Nelson, Jennifer, Odette, Fran, Odette, Fran, Sinding, Chris, Sinding, Chris, |
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author_sort |
Gould, Judy, |
title |
Cancer on the Margins : Method and Meaning in Participatory Research / |
title_sub |
Method and Meaning in Participatory Research / |
title_full |
Cancer on the Margins : Method and Meaning in Participatory Research / Judy Gould, Jennifer Nelson, Sussan Keller-Olaman. |
title_fullStr |
Cancer on the Margins : Method and Meaning in Participatory Research / Judy Gould, Jennifer Nelson, Sussan Keller-Olaman. |
title_full_unstemmed |
Cancer on the Margins : Method and Meaning in Participatory Research / Judy Gould, Jennifer Nelson, Sussan Keller-Olaman. |
title_auth |
Cancer on the Margins : Method and Meaning in Participatory Research / |
title_alt |
Frontmatter -- Contents -- List of Tables -- Foreword -- Acknowledgments -- Introduction -- PART ONE. Research Design in Participatory Approaches -- 1. Getting Started in Research with Marginalized Populations -- 2. Ethical Considerations in Participatory Breast Cancer Research -- 3. Community-Building versus Career- Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities -- PART TWO. Approaches in Data Analysis -- 4. Listening for Echoes: How Social Location Matters in Women's Experiences of Cancer Care -- 5. 'Nurses Can't Do It. They Have a Hundred and Ten Patients': Health Professionals' Working Conditions and the Experiences of Informal Caregivers -- PART THREE. The Politics of Representation -- 6. The Stories We Tell: Processes and Politics of Representation -- 7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority -- PART FOUR. Reflections on Research: From Different Standpoints -- 8. Reflections from an Intersection: Identity, History, Cancer, and Social Change -- 9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways -- 10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles -- PART FIVE. Implications and Impacts of Knowledge -- 11. Making a Difference with Research -- 12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research -- Recommended Sources For Further Reading -- Glossary of Terms -- Contributors -- Index |
title_new |
Cancer on the Margins : |
title_sort |
cancer on the margins : method and meaning in participatory research / |
publisher |
University of Toronto Press, |
publishDate |
2016 |
physical |
1 online resource (288 p.) Issued also in print. |
contents |
Frontmatter -- Contents -- List of Tables -- Foreword -- Acknowledgments -- Introduction -- PART ONE. Research Design in Participatory Approaches -- 1. Getting Started in Research with Marginalized Populations -- 2. Ethical Considerations in Participatory Breast Cancer Research -- 3. Community-Building versus Career- Building Research: The Challenges, Risks, and Responsibilities of Conducting Research with Aboriginal and Native American Communities -- PART TWO. Approaches in Data Analysis -- 4. Listening for Echoes: How Social Location Matters in Women's Experiences of Cancer Care -- 5. 'Nurses Can't Do It. They Have a Hundred and Ten Patients': Health Professionals' Working Conditions and the Experiences of Informal Caregivers -- PART THREE. The Politics of Representation -- 6. The Stories We Tell: Processes and Politics of Representation -- 7. If Cancer Has No Colour, What Can I Say? Negotiating Racism and Analytic Authority -- PART FOUR. Reflections on Research: From Different Standpoints -- 8. Reflections from an Intersection: Identity, History, Cancer, and Social Change -- 9. Journeying towards Authenticity: Reflections and Lessons from Our Pathways -- 10. Survivor, Activist, Advocate: Reflecting on Advisory Committee Roles -- PART FIVE. Implications and Impacts of Knowledge -- 11. Making a Difference with Research -- 12. Moving Knowledge: The Possibilities and Complexities of Qualitative and Participatory Research -- Recommended Sources For Further Reading -- Glossary of Terms -- Contributors -- Index |
isbn |
9781442687516 9783110490954 9780802094346 |
geographic_facet |
Ontario. |
url |
https://doi.org/10.3138/9781442687516 https://www.degruyter.com/isbn/9781442687516 https://www.degruyter.com/cover/covers/9781442687516.jpg |
illustrated |
Not Illustrated |
dewey-hundreds |
300 - Social sciences |
dewey-tens |
360 - Social problems & social services |
dewey-ones |
362 - Social welfare problems & services |
dewey-full |
362.196/9944900720713 |
dewey-sort |
3362.196 139944900720713 |
dewey-raw |
362.196/9944900720713 |
dewey-search |
362.196/9944900720713 |
doi_str_mv |
10.3138/9781442687516 |
oclc_num |
944176972 |
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Cancer on the Margins : Method and Meaning in Participatory Research / |
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