Genomics and public health : legal and socio-ethical perspectives / / edited by Bartha Maria Knoppers.
When genomics and public health are integrated into society, it will create as many responsibilities as rights for citizens, researchers, and decision makers. Indeed, the expression of genetic risk factors in both common and infectious diseases is of great interest to public health. Policy developme...
Saved in:
TeilnehmendeR: | |
---|---|
Year of Publication: | 2007 |
Edition: | 1st ed. |
Language: | English |
Series: | Nijhoff eBook titles 2007
|
Physical Description: | 1 online resource (341 p.) |
Notes: | Description based upon print version of record. |
Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
id |
993583647204498 |
---|---|
ctrlnum |
(CKB)1000000000412861 (EBL)468193 (OCoLC)238518855 (SSID)ssj0000161763 (PQKBManifestationID)11151826 (PQKBTitleCode)TC0000161763 (PQKBWorkID)10199096 (PQKB)11110604 (MiAaPQ)EBC468193 (nllekb)BRILL9789047411710 (Au-PeEL)EBL468193 (CaPaEBR)ebr10234948 (CaONFJC)MIL145813 (PPN)174397925 (EXLCZ)991000000000412861 |
collection |
bib_alma |
record_format |
marc |
spelling |
Genomics and public health [electronic resource] : legal and socio-ethical perspectives / edited by Bartha Maria Knoppers. 1st ed. Leiden ; Boston : Martinus Nijhoff, c2007. 1 online resource (341 p.) text txt computer c online resource cr Nijhoff eBook titles 2007 Description based upon print version of record. English Preliminary Material / Bartha Maria Knoppers -- A Introduction: Expansion of Screening? / J. Gerard Loeber -- B Introduction: Newborn Screening: Storage and Access for Research? / Ellen WRIGHT Clayton -- Introduction: of Genomics and Public Health: Building Public Goods? / Bartha Maria Knoppers -- Introduction: the Role of International Stakeholders in Genomics and Public Health / Andrea Boggio. When genomics and public health are integrated into society, it will create as many responsibilities as rights for citizens, researchers, and decision makers. Indeed, the expression of genetic risk factors in both common and infectious diseases is of great interest to public health. Policy development in this area then needs to tackle crucial themes such as: research and its application to public health and genomic medicine, the authority of the state, the right to privacy, and the roles and responsibilities of citizens and the State. Considering the current fears of a world-wide pandemic, this book is a timely and insightful exploration of both research possibilities and the role of the state. It will help to understand the limits of possible state access to biobanks and data. It examines the issue of the possible use of newborn screening programmes by public health authorities. It also attempts to understand the protection of individual privacy and the public interest in the promotion of health and the prevention of disease. Moreover, do citizens have a say? Will public attitudes be different towards research in public health genomics compared to genetic testing? Includes bibliographical references. Genetic screening Law and legislation. Genomics. Genomics Moral and ethical aspects. Public health. Knoppers, Bartha Maria 90-04-15559-7 |
language |
English |
format |
Electronic eBook |
author2 |
Knoppers, Bartha Maria |
author_facet |
Knoppers, Bartha Maria |
author2_variant |
b m k bm bmk |
author2_role |
TeilnehmendeR |
author_sort |
Knoppers, Bartha Maria |
author_additional |
Bartha Maria Knoppers -- J. Gerard Loeber -- Ellen WRIGHT Clayton -- Andrea Boggio. |
title |
Genomics and public health legal and socio-ethical perspectives / |
spellingShingle |
Genomics and public health legal and socio-ethical perspectives / Nijhoff eBook titles 2007 Preliminary Material / A Introduction: Expansion of Screening? / B Introduction: Newborn Screening: Storage and Access for Research? / Introduction: of Genomics and Public Health: Building Public Goods? / Introduction: the Role of International Stakeholders in Genomics and Public Health / |
title_sub |
legal and socio-ethical perspectives / |
title_full |
Genomics and public health [electronic resource] : legal and socio-ethical perspectives / edited by Bartha Maria Knoppers. |
title_fullStr |
Genomics and public health [electronic resource] : legal and socio-ethical perspectives / edited by Bartha Maria Knoppers. |
title_full_unstemmed |
Genomics and public health [electronic resource] : legal and socio-ethical perspectives / edited by Bartha Maria Knoppers. |
title_auth |
Genomics and public health legal and socio-ethical perspectives / |
title_alt |
Preliminary Material / A Introduction: Expansion of Screening? / B Introduction: Newborn Screening: Storage and Access for Research? / Introduction: of Genomics and Public Health: Building Public Goods? / Introduction: the Role of International Stakeholders in Genomics and Public Health / |
title_new |
Genomics and public health |
title_sort |
genomics and public health legal and socio-ethical perspectives / |
series |
Nijhoff eBook titles 2007 |
series2 |
Nijhoff eBook titles 2007 |
publisher |
Martinus Nijhoff, |
publishDate |
2007 |
physical |
1 online resource (341 p.) |
edition |
1st ed. |
contents |
Preliminary Material / A Introduction: Expansion of Screening? / B Introduction: Newborn Screening: Storage and Access for Research? / Introduction: of Genomics and Public Health: Building Public Goods? / Introduction: the Role of International Stakeholders in Genomics and Public Health / |
isbn |
1-281-45813-9 9786611458133 90-474-1171-4 90-04-15559-7 |
callnumber-first |
K - Law |
callnumber-subject |
K - General Law |
callnumber-label |
K3611 |
callnumber-sort |
K 43611 G46 G484 42007 |
illustrated |
Not Illustrated |
dewey-hundreds |
300 - Social sciences |
dewey-tens |
340 - Law |
dewey-ones |
340 - Law 344 - Labor, social, education & cultural law |
dewey-full |
340.2 344.04/196 344.04196 |
dewey-sort |
3340.2 |
dewey-raw |
340.2 344.04/196 344.04196 |
dewey-search |
340.2 344.04/196 344.04196 |
oclc_num |
238518855 |
work_keys_str_mv |
AT knoppersbarthamaria genomicsandpublichealthlegalandsocioethicalperspectives |
status_str |
n |
ids_txt_mv |
(CKB)1000000000412861 (EBL)468193 (OCoLC)238518855 (SSID)ssj0000161763 (PQKBManifestationID)11151826 (PQKBTitleCode)TC0000161763 (PQKBWorkID)10199096 (PQKB)11110604 (MiAaPQ)EBC468193 (nllekb)BRILL9789047411710 (Au-PeEL)EBL468193 (CaPaEBR)ebr10234948 (CaONFJC)MIL145813 (PPN)174397925 (EXLCZ)991000000000412861 |
carrierType_str_mv |
cr |
is_hierarchy_title |
Genomics and public health legal and socio-ethical perspectives / |
author2_original_writing_str_mv |
noLinkedField |
_version_ |
1797996211771277312 |
fullrecord |
<?xml version="1.0" encoding="UTF-8"?><collection xmlns="http://www.loc.gov/MARC21/slim"><record><leader>03568nam a22006494a 4500</leader><controlfield tag="001">993583647204498</controlfield><controlfield tag="005">20240501115229.0</controlfield><controlfield tag="006">m o d | </controlfield><controlfield tag="007">cr#-n---------</controlfield><controlfield tag="008">070126s2007 ne o 000 0 eng </controlfield><datafield tag="010" ind1=" " ind2=" "><subfield code="z"> 2007271360</subfield></datafield><datafield tag="016" ind1="7" ind2=" "><subfield code="a">101295748</subfield><subfield code="2">DNLM</subfield></datafield><datafield tag="016" ind1="7" ind2=" "><subfield code="a">B0700019</subfield><subfield code="2">bccb</subfield></datafield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">1-281-45813-9</subfield></datafield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">9786611458133</subfield></datafield><datafield tag="020" ind1=" " ind2=" "><subfield code="a">90-474-1171-4</subfield></datafield><datafield tag="024" ind1="7" ind2=" "><subfield code="a">10.1163/ej.9789004155596.i-329</subfield><subfield code="2">DOI</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(CKB)1000000000412861</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(EBL)468193</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(OCoLC)238518855</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(SSID)ssj0000161763</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(PQKBManifestationID)11151826</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(PQKBTitleCode)TC0000161763</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(PQKBWorkID)10199096</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(PQKB)11110604</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(MiAaPQ)EBC468193</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(nllekb)BRILL9789047411710</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(Au-PeEL)EBL468193</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(CaPaEBR)ebr10234948</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(CaONFJC)MIL145813</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(PPN)174397925</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(EXLCZ)991000000000412861</subfield></datafield><datafield tag="040" ind1=" " ind2=" "><subfield code="a">MiAaPQ</subfield><subfield code="c">MiAaPQ</subfield><subfield code="d">MiAaPQ</subfield></datafield><datafield tag="041" ind1=" " ind2=" "><subfield code="a">eng</subfield></datafield><datafield tag="050" ind1=" " ind2="4"><subfield code="a">K3611.G46</subfield><subfield code="b">G484 2007</subfield></datafield><datafield tag="060" ind1="0" ind2="0"><subfield code="a">2007 C-815</subfield></datafield><datafield tag="060" ind1="1" ind2="0"><subfield code="a">QU 58.5</subfield><subfield code="b">G33527 2007</subfield></datafield><datafield tag="082" ind1="0" ind2="0"><subfield code="a">340.2</subfield><subfield code="a">344.04/196</subfield><subfield code="a">344.04196</subfield></datafield><datafield tag="245" ind1="0" ind2="0"><subfield code="a">Genomics and public health</subfield><subfield code="h">[electronic resource] :</subfield><subfield code="b">legal and socio-ethical perspectives /</subfield><subfield code="c">edited by Bartha Maria Knoppers.</subfield></datafield><datafield tag="250" ind1=" " ind2=" "><subfield code="a">1st ed.</subfield></datafield><datafield tag="260" ind1=" " ind2=" "><subfield code="a">Leiden ;</subfield><subfield code="a">Boston :</subfield><subfield code="b">Martinus Nijhoff,</subfield><subfield code="c">c2007.</subfield></datafield><datafield tag="300" ind1=" " ind2=" "><subfield code="a">1 online resource (341 p.)</subfield></datafield><datafield tag="336" ind1=" " ind2=" "><subfield code="a">text</subfield><subfield code="b">txt</subfield></datafield><datafield tag="337" ind1=" " ind2=" "><subfield code="a">computer</subfield><subfield code="b">c</subfield></datafield><datafield tag="338" ind1=" " ind2=" "><subfield code="a">online resource</subfield><subfield code="b">cr</subfield></datafield><datafield tag="490" ind1="0" ind2=" "><subfield code="a">Nijhoff eBook titles 2007</subfield></datafield><datafield tag="500" ind1=" " ind2=" "><subfield code="a">Description based upon print version of record.</subfield></datafield><datafield tag="546" ind1=" " ind2=" "><subfield code="a">English</subfield></datafield><datafield tag="505" ind1="0" ind2="0"><subfield code="t">Preliminary Material /</subfield><subfield code="r">Bartha Maria Knoppers --</subfield><subfield code="t">A Introduction: Expansion of Screening? /</subfield><subfield code="r">J. Gerard Loeber --</subfield><subfield code="t">B Introduction: Newborn Screening: Storage and Access for Research? /</subfield><subfield code="r">Ellen WRIGHT Clayton --</subfield><subfield code="t">Introduction: of Genomics and Public Health: Building Public Goods? /</subfield><subfield code="r">Bartha Maria Knoppers --</subfield><subfield code="t">Introduction: the Role of International Stakeholders in Genomics and Public Health /</subfield><subfield code="r">Andrea Boggio.</subfield></datafield><datafield tag="520" ind1=" " ind2=" "><subfield code="a">When genomics and public health are integrated into society, it will create as many responsibilities as rights for citizens, researchers, and decision makers. Indeed, the expression of genetic risk factors in both common and infectious diseases is of great interest to public health. Policy development in this area then needs to tackle crucial themes such as: research and its application to public health and genomic medicine, the authority of the state, the right to privacy, and the roles and responsibilities of citizens and the State. Considering the current fears of a world-wide pandemic, this book is a timely and insightful exploration of both research possibilities and the role of the state. It will help to understand the limits of possible state access to biobanks and data. It examines the issue of the possible use of newborn screening programmes by public health authorities. It also attempts to understand the protection of individual privacy and the public interest in the promotion of health and the prevention of disease. Moreover, do citizens have a say? Will public attitudes be different towards research in public health genomics compared to genetic testing?</subfield></datafield><datafield tag="504" ind1=" " ind2=" "><subfield code="a">Includes bibliographical references.</subfield></datafield><datafield tag="650" ind1=" " ind2="0"><subfield code="a">Genetic screening</subfield><subfield code="x">Law and legislation.</subfield></datafield><datafield tag="650" ind1=" " ind2="0"><subfield code="a">Genomics.</subfield></datafield><datafield tag="650" ind1=" " ind2="0"><subfield code="a">Genomics</subfield><subfield code="x">Moral and ethical aspects.</subfield></datafield><datafield tag="650" ind1=" " ind2="0"><subfield code="a">Public health.</subfield></datafield><datafield tag="700" ind1="1" ind2=" "><subfield code="a">Knoppers, Bartha Maria</subfield></datafield><datafield tag="776" ind1=" " ind2=" "><subfield code="z">90-04-15559-7</subfield></datafield><datafield tag="906" ind1=" " ind2=" "><subfield code="a">BOOK</subfield></datafield><datafield tag="ADM" ind1=" " ind2=" "><subfield code="b">2024-05-03 03:28:55 Europe/Vienna</subfield><subfield code="d">00</subfield><subfield code="f">system</subfield><subfield code="c">marc21</subfield><subfield code="a">2012-02-25 22:31:51 Europe/Vienna</subfield><subfield code="g">false</subfield></datafield><datafield tag="AVE" ind1=" " ind2=" "><subfield code="i">Brill</subfield><subfield code="P">EBA Brill All</subfield><subfield code="x">https://eu02.alma.exlibrisgroup.com/view/uresolver/43ACC_OEAW/openurl?u.ignore_date_coverage=true&portfolio_pid=5343638980004498&Force_direct=true</subfield><subfield code="Z">5343638980004498</subfield><subfield code="b">Available</subfield><subfield code="8">5343638980004498</subfield></datafield></record></collection> |