Genetic transparency? : : ethical and social implications of next generation human genomics and genetic medicine / / edited by Malte Dreyer, Jeanette Erdmann, Christoph Rehmann-Sutter.

• Superior document: Life Sciences, Ethics and Democracy, Volume 2
• Author: Germany. Bundesministerium für Bildung und Forschung.
• TeilnehmendeR: Dreyer, Malte,; Erdmann, Jeanette,; Rehmann-Sutter, Christoph,; Germany. Bundesministerium für Bildung und Forschung.
• Place / Publishing House: Leiden, Netherlands ;, Boston, Massachusetts : : Brill-Rodopi,, 2016.; ©2016
• Year of Publication: 2016
• Language: English
• Series: Life sciences, ethics and democracy ; Volume 2.
• Physical Description: 1 online resource (292 p.)
• Notes: Includes index.
• Other title: Preliminary Material /; Introduction /; The Idea of ‘Genes’ and Their ‘Transparency’ /; Making Genomes Visible /; Who is the Subject of Genetic Responsibility? /; Personal Genomics: Transparent to Whom? /; Genetic Transparency versus Genetic Privacy – The Complex Ethics of Genetic Testing in Humans /; Understanding the Complexity of Regulation in an Evolving Health Technology Landscape /; Genetic Transparency – Transparency of Communication /; About the Authors /; Index /
• Bibliography: Includes bibliographical references and index.
• ISBN: 9004311890
• ISSN: 2211-4416
• Hierarchical level: Monograph
• Statement of Responsibility: edited by Malte Dreyer, Jeanette Erdmann, Christoph Rehmann-Sutter.

Genetic Transparency? tackles the question of who has, or should have access to personal genomic information. Genomic science is revolutionary in how it changes the way we live, individually and together, and how it changes the shape of society. If this is so, then – the authors of this volume claim – the rules that regulate genetic transparency should be debated carefully, openly and critically. It is important to see that the social and cultural meanings of DNA and genetic sequences are much richer than can be accounted for by purely biomedical knowledge. In this book, an international group of leading genomics experts and scholars from the humanities and social sciences discuss how the new accessibility of genomic information affects interpersonal relationships, our self-understandings, ethics, law, and healthcare systems. Contributors are: Kirsten Brukamp, Gabrielle Christenhusz, Lorraine Cowley, Malte Dreyer, Jeanette Erdmann, Andrei Famenka, Teresa Finlay, Caroline Fündling, Shannon Gibson, Cathy Herbrand, Angeliki Kerasidou, Lene Koch, Fruzsina Molnár-Gábor, Tim Ohnhäuser, Christoph Rehmann-Sutter, Benedikt Reiz, Vasilja Rolfes, Sara Tocchetti