Managing chronicity in unequal states : : ethnographic perspectives on caring / / edited by Laura Montesi, Melania Calestani.

• Superior document: Embodying inequalities
• TeilnehmendeR: Montesi, Laura,; Calestani, Melania,
• Place / Publishing House: London : : UCL Press,, [2021]; ©2021
• Year of Publication: 2021
• Language: English
• Series: Embodying inequalities.
• Physical Description: 1 online resource (xxiii, 247 pages).

Managing Chronicity in Unequal States investigates how people live with chronic conditions in different contexts around the world, where judgements on human worth have long-lasting effects on people's wellbeing.

Table of Contents

Cover -- Half Title -- Series Information -- Title Page -- Copyright Page -- Contents -- List of contributors -- Foreword -- References -- Acknowledgements -- Introduction -- Defining and defying chronicity -- Care and the politics of deservingness -- Structure of the book -- Concluding remarks -- Notes -- References -- 1 A house of cards: Chronicity, care packages and a 'good life' -- Background -- Methods -- Theoretical framework: Temporality, ethics and care -- Clarissa's struggle and the house of cards -- Temporal/spatial reconfiguration: a discussion -- Relationality: a discussion Conclusion -- Notes -- References -- 2 (Un)Deservingness and disregard: Chronicity, hospice and possibilities for care on the American periphery -- Deserving and undeserving of care -- (Un)Deservingness, attention and disregard -- Shaping a landscape of care through disregard -- Disregarded costs and the disappearance of medical equipment -- Claims to deservingness and bureaucratic mechanisms of disregard -- Durable medical equipment 'within reach' -- Snowbirds -- 'The only way to be heard': Inaudibility and absent complaints -- Ms Donovan -- Conclusion -- Notes -- References 3 Publicly privatised: Relative care support and the neoliberal reform in Finland -- Introduction -- Two facets of privatisation in the care system -- Relative caregivers in Archipelago Town and municipal support -- Families, relatives and caregiving practices in Archipelago Town -- Struggling with closed doors -- The professionalism of relative care -- The difference between relative caregivers and care workers -- Conclusion -- Notes -- References -- 4 The 'hassle' of 'good' care in dementia: Negotiating relatedness in the navigation of bureaucratic systems of support -- Introduction 'Official' paperwork -- The fuss and trust of relatedness -- 'Getting it all sorted': (Mis)adventures in bureaucratic hassle -- The state as a bad relative -- Conclusion -- References -- 5 Assemblages of care around albinism: Kin-based networks and (in)dependence in contemporary Tanzania -- Introduction -- Multiple assemblages of care around people with albinism -- The reduction of institutional care and the 'NGOisation' of the nation state -- Kin-based care and humanitarian discourses in Ilula: Florentina's experiences (In)dependence in Dar es Salaam: Daudi's self-care, care for and care about others -- Conclusion -- Note -- References -- 6 Alcoholism and evangelical healing in Indigenous Mexico: Chronicity and care at the margins of the state -- From comorbidity to syndemics of alcoholism and marginality -- Five centuries of alcoholisation -- Drinking at the margins -- Care for whom? Drinking patterns and the possibility of care -- Medical (un)care: Governmental health providers -- Evangelicals and alcohol: Healing within the community -- Conclusions -- Acknowledgements -- Notes -- References.