Negotiating Risk : : British Pakistani Experiences of Genetics / / Alison Shaw.
Drawing on fieldwork with British Pakistani clients of a UK genetics service, this book explores the personal and social implications of a ‘genetic diagnosis’. Through case material and comparative discussion, the book identifies practical ethical dilemmas raised by new genetic knowledge and shows h...
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Superior document: | Title is part of eBook package: De Gruyter Berghahn Books Complete eBook-Package 2000-2013 |
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Place / Publishing House: | New York; , Oxford : : Berghahn Books, , [2009] ©2009 |
Year of Publication: | 2009 |
Language: | English |
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Physical Description: | 1 online resource (320 p.) |
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Shaw, Alison, author. aut http://id.loc.gov/vocabulary/relators/aut Negotiating Risk : British Pakistani Experiences of Genetics / Alison Shaw. New York; Oxford : Berghahn Books, [2009] ©2009 1 online resource (320 p.) text txt rdacontent computer c rdamedia online resource cr rdacarrier text file PDF rda Frontmatter -- CONTENTS -- List of Figures -- Acknowledgements -- Introduction: Exploring genetic risk -- Chapter 1: Medical and public perceptions of consanguineous marriage and genetic risk -- Chapter 2: Close kin marriages: some anthropological theory and European history -- Chapter 3: British Pakistani cousin marriages: balancing marital risks -- Chapter 4: Medical surveillance and diagnostic uncertainty -- Chapter 5: Responding to reproductive risk -- Chapter 6: Foretelling and managing infant death -- Chapter 7: Genetic screening and the extended family -- Chapter 8: Genetic risk in context -- Bibliography -- Index restricted access http://purl.org/coar/access_right/c_16ec online access with authorization star Drawing on fieldwork with British Pakistani clients of a UK genetics service, this book explores the personal and social implications of a ‘genetic diagnosis’. Through case material and comparative discussion, the book identifies practical ethical dilemmas raised by new genetic knowledge and shows how, while being shaped by culture, these issues also cross-cut differences of culture, religion and ethnicity. The book also demonstrates how identifying a population-level elevated ‘risk’ of genetic disorders in an ethnic minority population can reinforce existing social divisions and cultural stereotypes. The book addresses questions about the relationship between genetic risk and clinical practice that will be relevant to health workers and policy makers. Mode of access: Internet via World Wide Web. In English. Description based on online resource; title from PDF title page (publisher's Web site, viewed 07. Nov 2022) Consanguinity. Culture. Medicine. Philosophy. Risk assessment. SOCIAL SCIENCE / Anthropology / General. bisacsh Title is part of eBook package: De Gruyter Berghahn Books Complete eBook-Package 2000-2013 9783110998283 https://doi.org/10.1515/9781845458874 https://www.degruyter.com/isbn/9781845458874 Cover https://www.degruyter.com/document/cover/isbn/9781845458874/original |
language |
English |
format |
eBook |
author |
Shaw, Alison, Shaw, Alison, |
spellingShingle |
Shaw, Alison, Shaw, Alison, Negotiating Risk : British Pakistani Experiences of Genetics / Frontmatter -- CONTENTS -- List of Figures -- Acknowledgements -- Introduction: Exploring genetic risk -- Chapter 1: Medical and public perceptions of consanguineous marriage and genetic risk -- Chapter 2: Close kin marriages: some anthropological theory and European history -- Chapter 3: British Pakistani cousin marriages: balancing marital risks -- Chapter 4: Medical surveillance and diagnostic uncertainty -- Chapter 5: Responding to reproductive risk -- Chapter 6: Foretelling and managing infant death -- Chapter 7: Genetic screening and the extended family -- Chapter 8: Genetic risk in context -- Bibliography -- Index |
author_facet |
Shaw, Alison, Shaw, Alison, |
author_variant |
a s as a s as |
author_role |
VerfasserIn VerfasserIn |
author_sort |
Shaw, Alison, |
title |
Negotiating Risk : British Pakistani Experiences of Genetics / |
title_sub |
British Pakistani Experiences of Genetics / |
title_full |
Negotiating Risk : British Pakistani Experiences of Genetics / Alison Shaw. |
title_fullStr |
Negotiating Risk : British Pakistani Experiences of Genetics / Alison Shaw. |
title_full_unstemmed |
Negotiating Risk : British Pakistani Experiences of Genetics / Alison Shaw. |
title_auth |
Negotiating Risk : British Pakistani Experiences of Genetics / |
title_alt |
Frontmatter -- CONTENTS -- List of Figures -- Acknowledgements -- Introduction: Exploring genetic risk -- Chapter 1: Medical and public perceptions of consanguineous marriage and genetic risk -- Chapter 2: Close kin marriages: some anthropological theory and European history -- Chapter 3: British Pakistani cousin marriages: balancing marital risks -- Chapter 4: Medical surveillance and diagnostic uncertainty -- Chapter 5: Responding to reproductive risk -- Chapter 6: Foretelling and managing infant death -- Chapter 7: Genetic screening and the extended family -- Chapter 8: Genetic risk in context -- Bibliography -- Index |
title_new |
Negotiating Risk : |
title_sort |
negotiating risk : british pakistani experiences of genetics / |
publisher |
Berghahn Books, |
publishDate |
2009 |
physical |
1 online resource (320 p.) |
contents |
Frontmatter -- CONTENTS -- List of Figures -- Acknowledgements -- Introduction: Exploring genetic risk -- Chapter 1: Medical and public perceptions of consanguineous marriage and genetic risk -- Chapter 2: Close kin marriages: some anthropological theory and European history -- Chapter 3: British Pakistani cousin marriages: balancing marital risks -- Chapter 4: Medical surveillance and diagnostic uncertainty -- Chapter 5: Responding to reproductive risk -- Chapter 6: Foretelling and managing infant death -- Chapter 7: Genetic screening and the extended family -- Chapter 8: Genetic risk in context -- Bibliography -- Index |
isbn |
9781845458874 9783110998283 |
callnumber-first |
R - Medicine |
callnumber-subject |
RB - Pathology |
callnumber-label |
RB155 |
callnumber-sort |
RB 3155 S435 42009 |
url |
https://doi.org/10.1515/9781845458874 https://www.degruyter.com/isbn/9781845458874 https://www.degruyter.com/document/cover/isbn/9781845458874/original |
illustrated |
Not Illustrated |
dewey-hundreds |
100 - Philosophy & psychology |
dewey-tens |
170 - Ethics |
dewey-ones |
174 - Occupational ethics |
dewey-full |
174.296042 |
dewey-sort |
3174.296042 |
dewey-raw |
174.296042 |
dewey-search |
174.296042 |
doi_str_mv |
10.1515/9781845458874 |
work_keys_str_mv |
AT shawalison negotiatingriskbritishpakistaniexperiencesofgenetics |
status_str |
n |
ids_txt_mv |
(DE-B1597)636490 |
carrierType_str_mv |
cr |
hierarchy_parent_title |
Title is part of eBook package: De Gruyter Berghahn Books Complete eBook-Package 2000-2013 |
is_hierarchy_title |
Negotiating Risk : British Pakistani Experiences of Genetics / |
container_title |
Title is part of eBook package: De Gruyter Berghahn Books Complete eBook-Package 2000-2013 |
_version_ |
1770177304102699008 |
fullrecord |
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