Unexpected : : Parenting, Prenatal Testing, and Down Syndrome / / Alison Piepmeier.
What prenatal tests and down syndrome reveal about our reproductive choicesWhen Alison Piepmeier—scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome—died of cancer in August 2016, she left behind an important unfinished manuscript about mothe...
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Place / Publishing House: | New York, NY : : New York University Press, , [2021] ©2021 |
Year of Publication: | 2021 |
Language: | English |
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Physical Description: | 1 online resource :; 2 b/w illustrations |
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Piepmeier, Alison, author. aut http://id.loc.gov/vocabulary/relators/aut Unexpected : Parenting, Prenatal Testing, and Down Syndrome / Alison Piepmeier. New York, NY : New York University Press, [2021] ©2021 1 online resource : 2 b/w illustrations text txt rdacontent computer c rdamedia online resource cr rdacarrier text file PDF rda Frontmatter -- Contents -- Preface -- 1. “I Wouldn’t Change You If I Could”: Disability as a Form of Human Diversity -- 2. The Inadequacy of “Choice”: Disability, Feminism, and Reproduction -- 3. The Welcome Table -- 4. Saints, Sages, and Victims: Down Syndrome and Parental Narrative -- 5. Accessible Words: Alison Piepmeier and the Boundaries of Disability -- 6 Six Questions on the Special, the Inclusive, and the Universal -- Acknowledgments -- Notes -- Bibliography -- Index -- About Alison Piepmeier -- About George Estreich and Rachel Adams restricted access http://purl.org/coar/access_right/c_16ec online access with authorization star What prenatal tests and down syndrome reveal about our reproductive choicesWhen Alison Piepmeier—scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome—died of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work.Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today’s world. Piepmeier takes us inside her own daughter’s life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing.At a time when medical technology is rapidly advancing, Unexpected provides a much-needed perspective on our complex, and frequently troubling, understanding of Down syndrome. Mode of access: Internet via World Wide Web. In English. Description based on online resource; title from PDF title page (publisher's Web site, viewed 28. Mrz 2024) Children with Down syndrome. Family planning Decision making. Motherhood. Mothers of children with Down syndrome. Prenatal diagnosis. Sociology of disability. SOCIAL SCIENCE / Women's Studies. bisacsh Adams, Rachel, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb Estreich, George, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb McGee, Brian, contributor. ctb https://id.loc.gov/vocabulary/relators/ctb https://doi.org/10.18574/nyu/9781479865468.001.0001 https://www.degruyter.com/isbn/9781479865468 Cover https://www.degruyter.com/document/cover/isbn/9781479865468/original |
language |
English |
format |
eBook |
author |
Piepmeier, Alison, Piepmeier, Alison, |
spellingShingle |
Piepmeier, Alison, Piepmeier, Alison, Unexpected : Parenting, Prenatal Testing, and Down Syndrome / Frontmatter -- Contents -- Preface -- 1. “I Wouldn’t Change You If I Could”: Disability as a Form of Human Diversity -- 2. The Inadequacy of “Choice”: Disability, Feminism, and Reproduction -- 3. The Welcome Table -- 4. Saints, Sages, and Victims: Down Syndrome and Parental Narrative -- 5. Accessible Words: Alison Piepmeier and the Boundaries of Disability -- 6 Six Questions on the Special, the Inclusive, and the Universal -- Acknowledgments -- Notes -- Bibliography -- Index -- About Alison Piepmeier -- About George Estreich and Rachel Adams |
author_facet |
Piepmeier, Alison, Piepmeier, Alison, Adams, Rachel, Adams, Rachel, Estreich, George, Estreich, George, McGee, Brian, McGee, Brian, |
author_variant |
a p ap a p ap |
author_role |
VerfasserIn VerfasserIn |
author2 |
Adams, Rachel, Adams, Rachel, Estreich, George, Estreich, George, McGee, Brian, McGee, Brian, |
author2_variant |
r a ra r a ra g e ge g e ge b m bm b m bm |
author2_role |
MitwirkendeR MitwirkendeR MitwirkendeR MitwirkendeR MitwirkendeR MitwirkendeR |
author_sort |
Piepmeier, Alison, |
title |
Unexpected : Parenting, Prenatal Testing, and Down Syndrome / |
title_sub |
Parenting, Prenatal Testing, and Down Syndrome / |
title_full |
Unexpected : Parenting, Prenatal Testing, and Down Syndrome / Alison Piepmeier. |
title_fullStr |
Unexpected : Parenting, Prenatal Testing, and Down Syndrome / Alison Piepmeier. |
title_full_unstemmed |
Unexpected : Parenting, Prenatal Testing, and Down Syndrome / Alison Piepmeier. |
title_auth |
Unexpected : Parenting, Prenatal Testing, and Down Syndrome / |
title_alt |
Frontmatter -- Contents -- Preface -- 1. “I Wouldn’t Change You If I Could”: Disability as a Form of Human Diversity -- 2. The Inadequacy of “Choice”: Disability, Feminism, and Reproduction -- 3. The Welcome Table -- 4. Saints, Sages, and Victims: Down Syndrome and Parental Narrative -- 5. Accessible Words: Alison Piepmeier and the Boundaries of Disability -- 6 Six Questions on the Special, the Inclusive, and the Universal -- Acknowledgments -- Notes -- Bibliography -- Index -- About Alison Piepmeier -- About George Estreich and Rachel Adams |
title_new |
Unexpected : |
title_sort |
unexpected : parenting, prenatal testing, and down syndrome / |
publisher |
New York University Press, |
publishDate |
2021 |
physical |
1 online resource : 2 b/w illustrations |
contents |
Frontmatter -- Contents -- Preface -- 1. “I Wouldn’t Change You If I Could”: Disability as a Form of Human Diversity -- 2. The Inadequacy of “Choice”: Disability, Feminism, and Reproduction -- 3. The Welcome Table -- 4. Saints, Sages, and Victims: Down Syndrome and Parental Narrative -- 5. Accessible Words: Alison Piepmeier and the Boundaries of Disability -- 6 Six Questions on the Special, the Inclusive, and the Universal -- Acknowledgments -- Notes -- Bibliography -- Index -- About Alison Piepmeier -- About George Estreich and Rachel Adams |
isbn |
9781479865468 |
callnumber-first |
R - Medicine |
callnumber-subject |
RJ - Pediatrics |
callnumber-label |
RJ506 |
callnumber-sort |
RJ 3506 D68 P53 42021 |
url |
https://doi.org/10.18574/nyu/9781479865468.001.0001 https://www.degruyter.com/isbn/9781479865468 https://www.degruyter.com/document/cover/isbn/9781479865468/original |
illustrated |
Not Illustrated |
dewey-hundreds |
600 - Technology |
dewey-tens |
610 - Medicine & health |
dewey-ones |
618 - Gynecology, obstetrics, pediatrics & geriatrics |
dewey-full |
618.92/858842 |
dewey-sort |
3618.92 6858842 |
dewey-raw |
618.92/858842 |
dewey-search |
618.92/858842 |
doi_str_mv |
10.18574/nyu/9781479865468.001.0001 |
work_keys_str_mv |
AT piepmeieralison unexpectedparentingprenataltestinganddownsyndrome AT adamsrachel unexpectedparentingprenataltestinganddownsyndrome AT estreichgeorge unexpectedparentingprenataltestinganddownsyndrome AT mcgeebrian unexpectedparentingprenataltestinganddownsyndrome |
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is_hierarchy_title |
Unexpected : Parenting, Prenatal Testing, and Down Syndrome / |
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