Living with Alzheimer's : : Managing Memory Loss, Identity, and Illness / / Renée L. Beard.
News of Alzheimer’s disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't see or...
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Beard, Renée L., author. aut http://id.loc.gov/vocabulary/relators/aut Living with Alzheimer's : Managing Memory Loss, Identity, and Illness / Renée L. Beard. New York, NY : New York University Press, [2016] ©2016 1 online resource text txt rdacontent computer c rdamedia online resource cr rdacarrier text file PDF rda Frontmatter -- CONTENTS -- ACKNOWLEDGMENTS -- Prologue: Lost in Translation -- 1. The Meaning of Memory Loss: Illness, Identity, and Biography -- 2. History and Technoscience: From Senility to Alzheimer’s -- 3. Constructing Facts in Clinical Practice: Interpreting, Diagnosing, and Treating Memory Loss -- 4. Being Cognitively Evaluated: Learning to Medicalize Forgetfulness -- 5. Hearing “the A Word”: The Road to Becoming an Alzheimer’s Patient -- 6. Everyday Life with Diagnosis: The New Normal -- 7. Advocating Alzheimer’s: Biomedical Structures and Social Movements -- 8. Forget Me Not: The Future of Alzheimer’s -- APPENDIX A. Interview Guides -- APPENDIX B. Study Design and Methodology -- APPENDIX C. Study Sites and Procedures -- NOTES -- REFERENCES -- INDEX -- ABOUT THE AUTHOR restricted access http://purl.org/coar/access_right/c_16ec online access with authorization star News of Alzheimer’s disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't see or hear from the people who actually have the disease. In Living with Alzheimer’s, Renée L. Beard argues that the exclusively negative portrayals of Alzheimer’s are grossly inaccurate. To understand what life with memory loss is really like, Beard draws on intensive observations of nearly 100 seniors undergoing cognitive evaluation, as well as post-diagnosis interviews with individuals experiencing late-in-life forgetfulness. Since we all forget sometimes, seniors with an Alzheimer’s diagnosis ultimately need to be socialized into medicalized interpretations of their forgetfulness. In daily life, people with the disease are forced to manage stigma and the presumption of incompetence on top of the actual symptoms of their ailment. The well-meaning public, and not their dementia, becomes the major barrier to a happy life for those affected. Beard also examines how these perceptions affect treatment for Alzheimer’s. Interviews with clinicians and staff from the Alzheimer’s Association reveal that despite the best of intentions, pejorative framings of life with dementia fuel both clinical practice and advocacy efforts. These professionals perpetuate narratives about “self-loss,” “impending cures,” and the economic and emotional “burden” to families and society even if they do not personally believe them. Yet, Beard also concludes that in spite of these trends, most of the diagnosed individuals in her study achieve a graceful balance between accepting the medical label and resisting the social stigma that accompanies it. In stark contrast to the messages we receive, this book provides an unprecedented view into the ways that people with early Alzheimer’s actively and deliberately navigate their lives. Mode of access: Internet via World Wide Web. In English. Description based on online resource; title from PDF title page (publisher's Web site, viewed 29. Jun 2022) Alzheimer's disease Patients Care. Alzheimer's disease. SOCIAL SCIENCE / Sociology / General. bisacsh Title is part of eBook package: De Gruyter New York University Press Complete eBook-Package 2016 9783110728989 print 9781479800117 https://doi.org/10.18574/nyu/9781479800117.001.0001 https://www.degruyter.com/isbn/9781479855377 Cover https://www.degruyter.com/document/cover/isbn/9781479855377/original |
language |
English |
format |
eBook |
author |
Beard, Renée L., Beard, Renée L., |
spellingShingle |
Beard, Renée L., Beard, Renée L., Living with Alzheimer's : Managing Memory Loss, Identity, and Illness / Frontmatter -- CONTENTS -- ACKNOWLEDGMENTS -- Prologue: Lost in Translation -- 1. The Meaning of Memory Loss: Illness, Identity, and Biography -- 2. History and Technoscience: From Senility to Alzheimer’s -- 3. Constructing Facts in Clinical Practice: Interpreting, Diagnosing, and Treating Memory Loss -- 4. Being Cognitively Evaluated: Learning to Medicalize Forgetfulness -- 5. Hearing “the A Word”: The Road to Becoming an Alzheimer’s Patient -- 6. Everyday Life with Diagnosis: The New Normal -- 7. Advocating Alzheimer’s: Biomedical Structures and Social Movements -- 8. Forget Me Not: The Future of Alzheimer’s -- APPENDIX A. Interview Guides -- APPENDIX B. Study Design and Methodology -- APPENDIX C. Study Sites and Procedures -- NOTES -- REFERENCES -- INDEX -- ABOUT THE AUTHOR |
author_facet |
Beard, Renée L., Beard, Renée L., |
author_variant |
r l b rl rlb r l b rl rlb |
author_role |
VerfasserIn VerfasserIn |
author_sort |
Beard, Renée L., |
title |
Living with Alzheimer's : Managing Memory Loss, Identity, and Illness / |
title_sub |
Managing Memory Loss, Identity, and Illness / |
title_full |
Living with Alzheimer's : Managing Memory Loss, Identity, and Illness / Renée L. Beard. |
title_fullStr |
Living with Alzheimer's : Managing Memory Loss, Identity, and Illness / Renée L. Beard. |
title_full_unstemmed |
Living with Alzheimer's : Managing Memory Loss, Identity, and Illness / Renée L. Beard. |
title_auth |
Living with Alzheimer's : Managing Memory Loss, Identity, and Illness / |
title_alt |
Frontmatter -- CONTENTS -- ACKNOWLEDGMENTS -- Prologue: Lost in Translation -- 1. The Meaning of Memory Loss: Illness, Identity, and Biography -- 2. History and Technoscience: From Senility to Alzheimer’s -- 3. Constructing Facts in Clinical Practice: Interpreting, Diagnosing, and Treating Memory Loss -- 4. Being Cognitively Evaluated: Learning to Medicalize Forgetfulness -- 5. Hearing “the A Word”: The Road to Becoming an Alzheimer’s Patient -- 6. Everyday Life with Diagnosis: The New Normal -- 7. Advocating Alzheimer’s: Biomedical Structures and Social Movements -- 8. Forget Me Not: The Future of Alzheimer’s -- APPENDIX A. Interview Guides -- APPENDIX B. Study Design and Methodology -- APPENDIX C. Study Sites and Procedures -- NOTES -- REFERENCES -- INDEX -- ABOUT THE AUTHOR |
title_new |
Living with Alzheimer's : |
title_sort |
living with alzheimer's : managing memory loss, identity, and illness / |
publisher |
New York University Press, |
publishDate |
2016 |
physical |
1 online resource |
contents |
Frontmatter -- CONTENTS -- ACKNOWLEDGMENTS -- Prologue: Lost in Translation -- 1. The Meaning of Memory Loss: Illness, Identity, and Biography -- 2. History and Technoscience: From Senility to Alzheimer’s -- 3. Constructing Facts in Clinical Practice: Interpreting, Diagnosing, and Treating Memory Loss -- 4. Being Cognitively Evaluated: Learning to Medicalize Forgetfulness -- 5. Hearing “the A Word”: The Road to Becoming an Alzheimer’s Patient -- 6. Everyday Life with Diagnosis: The New Normal -- 7. Advocating Alzheimer’s: Biomedical Structures and Social Movements -- 8. Forget Me Not: The Future of Alzheimer’s -- APPENDIX A. Interview Guides -- APPENDIX B. Study Design and Methodology -- APPENDIX C. Study Sites and Procedures -- NOTES -- REFERENCES -- INDEX -- ABOUT THE AUTHOR |
isbn |
9781479855377 9783110728989 9781479800117 |
callnumber-first |
R - Medicine |
callnumber-subject |
RC - Internal Medicine |
callnumber-label |
RC523 |
callnumber-sort |
RC 3523 B396 42017 |
url |
https://doi.org/10.18574/nyu/9781479800117.001.0001 https://www.degruyter.com/isbn/9781479855377 https://www.degruyter.com/document/cover/isbn/9781479855377/original |
illustrated |
Not Illustrated |
dewey-hundreds |
600 - Technology |
dewey-tens |
610 - Medicine & health |
dewey-ones |
616 - Diseases |
dewey-full |
616.831 |
dewey-sort |
3616.831 |
dewey-raw |
616.831 |
dewey-search |
616.831 |
doi_str_mv |
10.18574/nyu/9781479800117.001.0001 |
oclc_num |
945095843 |
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AT beardreneel livingwithalzheimersmanagingmemorylossidentityandillness |
status_str |
n |
ids_txt_mv |
(DE-B1597)548074 (OCoLC)945095843 |
carrierType_str_mv |
cr |
hierarchy_parent_title |
Title is part of eBook package: De Gruyter New York University Press Complete eBook-Package 2016 |
is_hierarchy_title |
Living with Alzheimer's : Managing Memory Loss, Identity, and Illness / |
container_title |
Title is part of eBook package: De Gruyter New York University Press Complete eBook-Package 2016 |
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