"Save My Kid" : : How Families of Critically Ill Children Cope, Hope, and Negotiate an Unequal Healthcare System / / Amanda M. Gengler.
A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart o...
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| Superior document: | Title is part of eBook package: De Gruyter EBOOK PACKAGE COMPLETE 2020 English |
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| Place / Publishing House: | New York, NY : : New York University Press, , [2020] ©2020 |
| Year of Publication: | 2020 |
| Language: | English |
| Online Access: | |
| Physical Description: | 1 online resource |
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Table of Contents:
- Frontmatter
- Contents
- Preface
- Part I: Families in Crisis
- 1. Hope Is a Thing with Feathers
- 2. Studying Families of Critically Ill Children
- Part II: Unequal Illnesses
- 3. Care- Captaining: Climbing the Rungs of the US Healthcare System
- 4. Care- Entrusting: Staying on the Medical Sidelines
- 5. Blending and Switching Care Strategies: Finding Emotional Equilibrium
- Part III: Tangled Up in Hope
- 6. When Everything Is Not Enough
- 7. The Fragility and Tenacity of Hope
- 8. Emotionally Perilous Paths: Illness Management, Emotion Management, and the Production of Healthcare Inequalities
- Acknowledgments
- Appendix A: Doing Fieldwork in Emotionally Fraught Settings: A Brief Reflection
- Appendix B: Family and Physician Demographics
- Notes
- References
- Index
- About the Author