Testing Baby : : The Transformation of Newborn Screening, Parenting, and Policymaking / / Rachel Grob.

• Superior document: Title is part of eBook package: De Gruyter Rutgers University Press Backlist eBook-Package 2000-2013
• VerfasserIn: Grob, Rachel,
• Place / Publishing House: New Brunswick, NJ : : Rutgers University Press, , [2011]; ©2011
• Year of Publication: 2011
• Language: English
• Series: Critical Issues in Health and Medicine
• Physical Description: 1 online resource (290 p.) :; 20

Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized. Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob's cautionary tale also explores the powerful ways that parents' narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates.

Table of Contents

Frontmatter -- Contents -- Acknowledgments -- Chapter 1. Saving Babies, Changing Lives -- Chapter 2. Diagnostic Odysseys, Old and New: How Newborn Screening Transforms Parents' Encounters with Disease -- Chapter 3. Specters in the Room: Parenting in the Shadow of Cystic Fibrosis -- Chapter 4. Encounters with Expertise: Parents and Health Care Professionals -- Chapter 5. A House on Fire: How Private Experiences Ignite Public Voices -- Chapter 6. Brave New Worlds: Visible in a Single Drop of Blood? -- Notes -- References -- Index