Uncharted : : How Scientists Navigate Their Own Health, Research, and Experiences of Bias / / / Skylar Bayer, Gabriela Serrato Marks.

• Superior document: Title is part of eBook package: De Gruyter Columbia University Press Complete eBook-Package 2023
• VerfasserIn: Bayer, Skylar,; Marks, Gabriela Serrato,
• Author: Marks, Gabriela Serrato,; Yona, Leehi,
• MitwirkendeR: Asani, Furaha,; Bayer, Skylar,; Bernard, Olivia,; Chen, Sami,; Cooke, Michele,; Everett, Glyn,; Fern, Sophie,; Francisco, Taylor,; Harazin, Katie,; Hayden, Maureen J.,; Heidt, Amanda,; Kgoadi, Mpho,; Marks, Gabriela Serrato,; Martin, Vincent,; Menezes, Sunshine,; Nolan, Syreeta L.,; Okolo, Sophie,; O'Brien, Amanda,; Persaud, Divya M.,; Piatek, Jennifer L.,; Pickering, Jenn,; Schrage, Alma C.,; Schroeder, Stephanie,; Serrato Marks, Gabi,; Shearer, Daisy,; Simonis, Juniper L.,; Steele, Alexander G.,; Tung Corcoran, Emma,; Wendell Mankin, Richard,; White, Lauren A.,; Yona, Leehi,
• Place / Publishing House: New York, NY : : : Columbia University Press, , [2023]; ©2023
• Year of Publication: 2023
• Language: English
• Physical Description: 1 online resource :; 31 images

People with disabilities are underrepresented in STEM fields, and all too often, they face isolation and ableism in academia. Uncharted is a collection of powerful first-person stories by current and former scientists with disabilities or chronic conditions who have faced changes in their careers, including both successes and challenges, because of their health. It gives voice to common experiences that are frequently overlooked or left unspoken. These deeply personal accounts describe not only health challenges but also the joys, sorrows, humor, and wonder of science and scientists.With a breadth of perspectives on being disabled or chronically ill, these stories highlight the intersectionality of minoritized identities with the disability community. Uncharted features essays by contributors who are d/Deaf, blind, neurodivergent, wheelchair users, have experienced traumatic brain injuries, have blood sugar disorders, have rare medical diagnoses, or have received psychiatric diagnoses, among many others. In many cases, the scientific field is not fully accessible to them, and they frankly describe struggling as well as thriving alongside their conditions.This book serves as representation for scientists who have never felt comfortable disclosing their disability or who have never felt fully understood. The stories shared in this book seek to normalize medical conditions and disabilities in scientific culture, offering recommendations for how and why to improve access. Uncharted is vital and compelling reading for current and aspiring scientists who want to make their fields more inclusive and supportive for everyone.

Table of Contents

Frontmatter -- CONTENTS -- Introduction: Charting the Course -- I GETTING UNDERWAY -- Introduction -- 1 Rolling to Freedom -- 2 Regaining Control -- 3 Changing Tides: What Does It Mean to Be Blind? -- 4 Dear Cassy -- 5 Sea Legs: Working Around Motion Sickness -- II BETWEEN THE DEVIL AND THE DEEP BLUE SEA -- Introduction -- 6 A Safe Space -- 7 When Fieldwork Doesn't Work: A Broken Bildungsroman -- 8 Birds, Bees, and Anxieties -- 9 My Brown Waterproof Boots -- 10 Hope Is My Anchor -- III RALLYING THE CREW -- Introduction -- 11 The Place I Rest -- 12 Sometimes It Doesn't Get Better, but That's OK, Too -- 13 Christmas on Rangatira Island -- 14 Living with a Rare Condition -- 15 Planning the Journey of a Lifetime -- IV IN THE HEART OF THE MAELSTROM -- Introduction -- 16 The Butt Balloon -- 17 This Is Wallace Alfred Russel Simonis -- 18 The Day That Changed Everything -- 19 Being the First and Only to Ask -- 20 Lost in New Orleans -- 21 Ascending the Cinder Cone -- V REFLECTIONS IN THE WATER -- Introduction -- 22 Thinking Beyond the "Social Model of Disability" -- 23 Suffer in Silence or Leave -- 24 (In)Visibly Eroding Bones, Bodies, and Landscapes -- 25 The Abyss -- 26 Navigating the Curve -- 27 Tidy Columns -- VI I AM THE CAPTAIN OF MY SHIP -- Introduction -- 28 Broader Impacts -- 29 Doo hwił hóyéeda . . . A Lesson Lost in Translation . . . -- 30 The Ridge -- 31 Who I Am -- 32 The Best Place for My Hearing Aids Is on My Desk -- Conclusion: Aid to Navigation -- Acknowledgments -- Reflection and Discussion Questions -- Further Reading and Resources -- Glossary -- Bibliography -- About the Contributors