Achieving justice in genomic translation : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.].
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Year of Publication: | 2011 |
Language: | English |
Online Access: | |
Physical Description: | x, 212 p. |
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020 | |z 9780195390384 (hardback alk. paper) | ||
020 | |a 9780199909742 (electronic bk.) | ||
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050 | 4 | |a QH438.7 |b .A26 2011 | |
082 | 0 | 4 | |a 174.2/96042 |2 22 |
245 | 0 | 0 | |a Achieving justice in genomic translation |h [electronic resource] : |b re-thinking the pathway to benefit / |c edited by Wylie Burke ... [et al.]. |
260 | |a Oxford ; |a New York : |b Oxford University Press, |c 2011. | ||
300 | |a x, 212 p. | ||
504 | |a Includes bibliographical references and index. | ||
505 | 0 | |a Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks. | |
533 | |a Electronic reproduction. Ann Arbor, MI : ProQuest, 2015. Available via World Wide Web. Access may be limited to ProQuest affiliated libraries. | ||
650 | 0 | |a Human genetics |x Research |x Moral and ethical aspects. | |
650 | 0 | |a Genomics |x Research |x Moral and ethical aspects. | |
650 | 0 | |a Genetic screening |x Moral and ethical aspects. | |
655 | 4 | |a Electronic books. | |
700 | 1 | |a Burke, Wylie. | |
710 | 2 | |a ProQuest (Firm) | |
856 | 4 | 0 | |u https://ebookcentral.proquest.com/lib/oeawat/detail.action?docID=829360 |z Click to View |