Global Health Research in an Unequal World : : Ethics Case Studies from Africa.
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Place / Publishing House: | Oxford : : CAB International,, 2016. Ã2016. |
Year of Publication: | 2016 |
Edition: | 1st ed. |
Language: | English |
Online Access: | |
Physical Description: | 1 online resource (340 pages) |
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Table of Contents:
- Intro
- Cover Page
- Title Page
- Copyright Page
- Forewords
- Preface
- Acknowledgements
- Contents
- Finding your way around the book
- INTRODUCTION
- PART ONE: TRAINING CASE STUDIES
- Researcher-participant relationships
- 1. Fieldwork and friendship: working in your own community
- 2. Soap and persuasion: recruiting and caring for participants
- 3. Gel and/or condoms: safety in a microbicide trial
- 4. Friends like how?: getting personally involved with participants
- 5. Readability and sweet talk: the translation and comprehension of study documents
- 6. We don't pay: 'bus fares' and other gifts in research
- 7. Your friend has nice clothes: confidentiality and staff identity in HIV home follow-up
- 8. Truth and lies: doing fieldwork in your own community
- 9. I could be a sex worker: meanings of exclusion and inclusion criteria to participants
- 10. They just come and ask questions: participants' understanding of the purpose of research
- 11. Responsibility for what and whom?: end-of-trial and long-term healthcare
- 12. Hunger is not our mandate: dealing with poverty among research participants
- 13. They just want to sign quickly: different interpretations of informed consent
- 14. Martha's dilemma: foreign medical research as public good or exploitation?
- 15. Routine healthcare: whose obligation?
- Community and family relationships
- 16. Everybody's corrupt: understanding suspicion in medical research
- 17. Bad press: the origins and impact of 'blood stealing' rumours
- 18. People will always talk: protecting participants from stigma in an HIV study
- 19. Lost in translation: public communication and power relations
- 20. Husband out of town: gender relations and decision-making
- 21. Chop your money!: challenges in recruitment and enforcing study rules.
- 22. My husband doesn't know: involving male partners in microbicide research
- 23. Of course we speak English: community engagement and disseminating information
- 24. Satanists or scientists?: dealing with negative associations 128
- 25. The Sheep Study: old memories of food, blood and death
- 26. Will they leave us where we are?: expectations of medical research interventions
- 27. Seeing is believing: trial regulations vs. community engagement in an Ebola vaccine trial
- Institutional relationships
- 28. Too many people have turned up!: addressing stakeholders' concerns
- 29. Data troubles: collaboration and the future of partnership
- 30. Between envy, suspicion and desire: embedding research in government healthcare facilities
- 31. The end of a trial: post-trial responsibilities and relationships
- 32. Helping hand: working with public hospitals
- 33. Whose capacity?: collaboration through capacity building
- 34. Like a market: competitive recruitment and double enrolment
- 35. Under one roof: sharing resources in a district hospital
- 36. We will not do your work for free: incentives, per diems and professional culture
- 37. Is it a gift, really?: drug donations, access and social benefit
- Staff relationships
- 38. Per diem: practical inequalities in scientific collaboration
- 39. Do anthropologists know best?: relationships between social scientists and medical researchers
- 40. Who are you?: employment issues and North-South relationships
- 41. Snot for sale: staff's handling of transport reimbursement and rumours
- 42. I'm sure you'll give her a chance: employment and corruption
- How to use the case studies
- Guidance for facilitators
- Facilitator's preparation template
- First experiences of piloting this tool in Africa and Europe
- Resources
- PART TWO: ACADEMIC BACKGROUND.
- Academic background: ethical deliberation, engaged conscience, and conscious choice
- The context of global health inequality
- Inequality and discomfort
- Emergent debates
- We need to talk more
- we need to do more
- REFERENCES
- INDEX OF CASE STUDIES
- Case studies by learning objective
- Case studies by keyword
- ABOUT THE CONTRIBUTORS
- Footnote
- Academic Background.