Life Situation among Persons Living with Inflammatory Bowel Disease.

• Superior document: Linköping University Medical Dissertations Series ; v.1593
• Author: Pihl Lesnovska, Katarina.
• Place / Publishing House: Linköping : : Linkopings Universitet,, 2017.; {copy}2017.
• Year of Publication: 2017
• Edition: 1st ed.
• Language: English
• Series: Linköping University Medical Dissertations Series
• Physical Description: 1 online resource (68 pages)

Table of Contents

Intro -- CONTENTS -- ABSTRACT -- LIST OF PAPERS -- ABBREVIATIONS -- ACKNOWLEDGEMENTS -- INTRODUCTION -- BACKGROUND -- Historical background -- Diagnosis -- Course of the disease and symptoms -- Pathogenesis -- Epidemiology -- Associated health problems -- Treatment -- Impact on life situation -- Disease related knowledge -- Quality of care -- Assessing quality of care -- Rationale for this thesis -- AIMS -- General aim -- Specific aims -- METHOD -- Design -- Overview of the studies -- Study I -- Study II -- Study III -- Participants and sample size -- Setting and procedure -- Data Collection -- Demographic data -- Interviews (I, II) -- Study I -- Study II -- Questionnaire (III) -- QoC-IBD -- Phase I - Question generation -- Phase III - Measurement evaluation -- QOUTE-IBD -- Data analysis -- Qualitative analysis (I, II) -- Qualitative content analysis -- Critical incident techniques -- Focus group interviews -- Statistical analysis -- Ethical considerations -- RESULTS -- Characteristics of the participants -- When daily life becomes affected by symptom burden -- The importance of disease related knowledge -- Being met with trust and respect -- Being an active part of healthcare decisions -- DISCUSSION -- When daily life become affected by symptom burden -- The importance of disease related knowledge -- Being met with trust and respect -- Being an active part of healthcare decisions -- Important aspects of quality of care -- Methodological discussion -- Validity and reliability -- Drop out and question non response study IV -- Conclusions -- Clinical implication -- Future research -- POPULÄRVETENSKAPLIG SAMMANFATTNING -- REFERENCES.