Challenging Assumptions Around Dementia : : User-Led Research and Untold Stories.

Challenging Assumptions Around Dementia : : User-Led Research and Untold Stories.

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Bibliographic Details
:
Ashworth, Rosalie.
TeilnehmendeR:
Fyvel, Sue.
Hill, Alyson.
Maddocks, Chris.
Qureshi, Masood.
Ross, David.
Hay, Stuart.
Robertson, Martin.
Gilder, Willy.
Henry, Winnie.
Place / Publishing House:Cham : : Springer International Publishing AG,, 2023.
©2023.
Year of Publication:2023
Edition:1st ed.
Language:English
Online Access:
Physical Description:1 online resource (154 pages)
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Table of Contents:
  • Intro
  • About the Book
  • Contents
  • List of Figures
  • Chapter 1: Introduction
  • Meet the Co-authors
  • Let's Write a Book
  • Writing Sessions
  • Missing Voices
  • Emotional Content
  • Dementia Statistics Overview
  • Chris's Story
  • Useful Resources:
  • LGBTQ+ Community
  • Useful Resources:
  • Alzheimer's Society
  • Alyson, Sheila, and David's Story
  • Useful Resource:
  • References
  • Chapter 2: 'You Don't Look Like You Have Dementia'
  • What Does Dementia at the Different Stages Look Like?
  • Fighting for Financial Aid
  • Raising Awareness Through a 'dementia card'
  • Does It Help if People Know?
  • Educating People About Dementia
  • MAQ's Story
  • MAQ
  • Useful Resources:
  • Winnie and Wullie's Story
  • Winnie
  • Useful Resources:
  • Willy's Story
  • Willy
  • Useful Resources:
  • References
  • Chapter 3: 'How Does Your Dementia Affect You?'
  • Understanding the Brain
  • Myths About the Brain
  • Areas of the Brain
  • Myths About Dementia
  • Myth 1: 'Dementia Only Affects Older Adults'
  • Myth 2: 'There Is Nothing You Can Do to Change Your Risk of Dementia'
  • Myth 3: 'Alzheimer's Disease and Dementia Are the Same Thing'
  • Alzheimer's Disease
  • Lived Experience
  • Vascular Dementia
  • Lived Experience
  • Posterior Cortical Atrophy
  • Lived Experience
  • Frontotemporal Dementia
  • Lived Experience
  • Semantic Dementia
  • Lived Experience
  • Lewy Body Dementia
  • Lived Experience
  • Diagnosis Experience
  • Martin's Story
  • Myra and Archie's Story
  • Agnes' Story
  • Useful Resources:
  • References
  • Chapter 4: 'I Didn't Know I Was a Carer'
  • Working with Paid Carers
  • Being Recognised as Experts by Experience
  • Sharing Home Space
  • Examples of Best Practice in Care
  • Planning Ahead
  • Jenny and Her Mum's Story
  • Useful Resources:
  • Fred's Story
  • Useful Resources:
  • David and Anne's Story
  • References.
  • Chapter 5: What Research Means to Us: NRS Neuroprogressive and Dementia Network
  • Getting to Know the Neuroprogressive and Dementia Network
  • What Got You into Researching Dementia and Neuroprogressive Conditions?
  • Could You Share Your Experiences of Dementia Research Over the Past 10-15 Years?
  • Why Is Research Important?
  • What Do You Wish People Knew about Research?
  • Approaches to Clinical Trials in Dementia
  • Lessons from COVID-19 Clinical Trials
  • Hear from Research Participants from the Neuroprogressive and Dementia Network
  • Spectrum of Research
  • Understandings of Research
  • Building a Partnership
  • Examples of Best Practice in Co-produced Research
  • Meet The Smarties
  • Dementia Alumni
  • Dementia Enquirers
  • What We Would Like to See from Research Going Forward
  • Stuart &amp
  • Eileen's Story
  • Sue's Story
  • Rosie's Story
  • References
  • Chapter 6: Final Thoughts
  • Question 1
  • Question 2
  • Question 3
  • For People Living with Dementia
  • Family Members
  • Professionals
  • Members of the Public
  • Get in Touch
  • Embedded Links
  • Index.

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