Genetic databases : socio-ethical issues in the collection and use of DNA / / edited by Richard Tutton and Oonagh Corrigan.

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Year of Publication:2004
Language:English
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Physical Description:viii, 211 p.
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Table of Contents:
  • Introduction : public participation in genetic databases / Richard Tutton and Oonagh Corrigan
  • Person, property and gift : exploring languages of tissue donation to biomedical research / Richard Tutton
  • Blood donation for genetic research : what can we learn from donors' narratives? / Helen Busby
  • Levels and styles of participation in genetic databases : a case study of the North Cumbria Community Genetics Project / Erica Haimes and Michael Whong-Barr
  • Informed consent : the contradictory ethical safeguards in pharmacogenetics / Oonagh Corrigan
  • Ambiguous gifts : public anxiety, informed consent and biobanks / Klaus Hoeyer
  • Abandoning informed consent : the case of genetic research in population collections / Jane Kaye
  • Children's participation in genetic epidemiology : consent and control / Emma Williamson ... [et al.]
  • 'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections? / Sue Weldon
  • Tissue collection and the pharmaceutical industry : investigating corporate biobanks / Graham Lewis.